Thursday, July 21, 2016

SolSurvivors Oregon receives $50,000 to partner with researchers on melanoma study

The SolSurvivors Community Engagement Committee.

Exciting news! The project I've been leading in collaboration with Oregon Health & Science University and SolSurvivors has been selected to receive $50,000 from the Patient-Centered Outcomes Research Institute (PCORI). Funds will be used to develop a research study that reflects the needs and interests of melanoma patients and their families.

The award comes from PCORI’s Pipeline to Proposal program, which enables individuals and groups who are not typically involved in the scientific research process to develop partnerships with researchers and spearhead the design of a patient-centered research proposal. Since 2013, we have been awarded a total of $90,000 to build a Community Engagement Committee and support the OHSU Department of Dermatology on engagement activities related to the Melanoma Community Registry.

Last fall, our project team jointly hosted a Melanoma Community Research Forum, where over 90 participants gathered in Portland and Bend to learn about the latest melanoma research and participate in small-group discussions about their experience with melanoma. Themes identified during the event are being used to shape a collaborative research project, as well as a community event to be held in November 2016.

Want to get involved? Send me a note at katie@prettyinpale.org.

About SolSurvivors Oregon
SolSurvivors Oregon is a network of melanoma survivors, family, and friends who are passionate about transforming the way we prevent, diagnose, and treat melanoma. We coordinate community events to educate patients and their families, advocate for sun safety, and are working closely with researchers at OHSU to wage a War on Melanoma.

About PCORI 
PCORI is an independent, non-profit organization authorized by Congress in 2010 to fund comparative effectiveness research that will provide patients, their caregivers, and clinicians with the evidence needed to make better-informed health and healthcare decisions. PCORI is committed to seeking input from a broad range of stakeholders to guide its work.

10 comments:

  1. In 1996, Nirupama Jonny brand in the replica watches watchmaking Art: Cradle of tawi Valley (Val de Travers) founded. rolex replica As a world famous Swiss top watch brands, thanks to the Santos Family Foundation (Sandoz Family Foundation) support and protection of the high quality Swiss commitment, Nirupama Jonny became replica watches uk the brand development of a handful of independent watchmakers have their own line of production network.

    ReplyDelete
  2. pioneer handbag replica .Thereafter Oyster watch combines more innovative technologies, such as automatic chain with Replica handbags thallium constant pendulum movement and so on. These innovative invention features common achievements of Rolex Daytona the legendary Oyster watch, Rolex created a reputation for excellence, many innovations for Replica watches UK the watch industry has set a new standard.Automatic movement. Replica Watches replica Rolex history between its visionary.

    ReplyDelete
  3. Why could my Husband not be loyal to me, respect me as his wife, love me and only me without breaking our marriage vows? My Husband’s behaviors caused me to think maybe we were not meant to be together. It hurts to the bone when your life partner turns against you, making you sad instead of being your motivator, always engaging you in constant argument and confusion with the kids. The worst is him being unfaithful, seeing other women is like stabbing you in the back. My better half caused me so much pain for over 2years and 4months, we reassembly separated like 6weeks because his continuous reckless behavior became unbearable. I searched for permanent solution to get him back to us both physical and spiritual throughout the entire 6weeks. I was lucky to have Dr. Wakina (dr.wakinalovetemple@gmail.com) handle my case after reading alot of his spell stories. “Can you help me get my Husband back” was the request I made and the rest is history. My marital home is even better since the love spell changed and brought back my Husband. Dr. Wakina made me believe in second chance.

    ReplyDelete